ONELAB Survey "Citizens' awareness and acceptance of Mass Community disease detection Testing"

INFORMED CONSENT FORM

For the online questionnaire/survey "Citizens’ awareness and acceptance of mass community disease detection testing "

1 – Brief information about the research activity within the ONELAB Project

ONELAB focuses on designing and coordinating mobile laboratory operations for the detection and identification of infectious agents. Integrated data communication will support multi-agency decision making for potential pandemic preparedness and response. Modular laboratories will be developed to accommodate flexible and scalable scenario deployments in a range of settings. Advanced measurement systems for disease detection response will provide a panel of acute viral infection biomarkers enables early detection of disease during its asymptomatic incubation. Proven methodologies developed in response to COVID-19 will be used to develop and demonstrate a workflow for semi-autonomous disease specific biomarker discovery. As a result, ONELAB solution will provide point-of-need disease detection, along with high-level situational awareness. For this to be successfully achieved, input from experts around the world is required as it is essential to understand existing needs and gaps, strengths and weaknesses as qualitative input for improved disaster management.

2 – The survey

The present survey intends to provide information on citizens’ awareness and acceptance of mass community disease detection testing. This data will allow the ONELAB team to further its analysis on the perception, acceptance, awareness and trust of mass community disease detection testing and its perceived impact and effectiveness. This allows ONELAB to integrate these inputs and concerns in its activities, design and products.
Therefore, your answers will be anonymous and will not be used for any purpose other than that needed for this analysis.
You are invited to voluntarily participate in this survey.
You will be asked to provide answers to the following survey that consists of 6 sections: 1) Trust towards institutions; 2) Risk perception 3) Your experience with COVID-19; 4) Mass Community Testing awareness; 5) Mass Community Testing Perception and Acceptance; 6) Socio-demographics.
If you think that:

some part of the survey does not concern you, or
you are Not Able to answer because you don't understand all or part of the question

please click on the N/A (Not Applicable) choice.

Again, this option is not only for the case of being Not Applicable but also in the case that you are Not Able to answer because you don't understand all or part of the question.
On the contrary, if you do not know what to answer to a specific question, please click on the “Do not know” choice.

The answers provided in the survey will be analysed in an aggregate form and will be published/presented in a public report (i.e., ONELAB deliverable 2.1) outlining the results of this ‘research results.
We thank you in advance for your contribution to ONELAB research activities.

3 – Duration – time estimated to complete the survey

The survey is expected to take approximately 15 minutes to complete.

4 – Information about the data collected within the survey

Information collected by this survey is related to your opinion regarding your awareness and acceptance of disease detection testing.

4.1. What type of personal data will be collected and used?
No personal data (e.g., name, surname, IP address) will be collected within this survey.

4.2. For how long will personal data be processed (stored and used)?
Information will be kept for the duration of the project. The information will be kept by the ONELAB project partners/researchers and stored in a secure server.

4.3 What special categories of personal data will be collected and used?
No special categories of data will be collected.

4.4. Transfer of data
None of the information you give will be transferred to non-EU/EEC countries.

4.5 Automated decision making
No automated decision making is used.

4.6 Your rights

Your participation in the ONELAB project is completely voluntary, and you can choose to stop participating at any time without any consequences.
Your participation is activity-based. By agreeing to participate to this survey, you do not commit to take aprt in any othe ONELAB activity.
You have a right to ask for a restriction of the processing of the information your provide in this survey.

4.7 Competent Data Protection Authority
Garante per la protezione dei dati personali (GPDP) Italian Data Protection Authority
Website: https://www.garanteprivacy.it/
E-mail: urp@gpdp.it

5. How to contact us (for further information or any queries)

For further information or any queries please contact the ONELAB partner responsible for this survey:
ISIG - Istituto di Sociologia Internazionale di Gorizia (ISIG)
ISIG researcher: Lorenzo De Sabbata (desabbata@isig.it)
ISIG Data Protection Officer: Marina Andeva (andeva@isig.it)

At this stage, to participate in the ONELAB survey you need to consent to the following questions:

Question Title

* 1. Are you at least 18 years old?

Yes